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Rebecca's Story

Wednesday, February 20, 2013
Images Captured by D4 Photography

Tiny Light Rebecca is perfect, beautiful and amazing, according to her mom Danielle. This little ray of sunshine is always ready with a big smile, especially when it comes to her big brother Matthew. The two siblings adore each other and Rebecca never forgets to include him, even when she gets a special treat.

Rebecca was born full-term, but her parents knew their daughter was in trouble in the delivery room when doctors said, “Call the NICU.” It was about a month before they got the diagnosis – DiGeorge syndrome, also known as 22q11.2 deletion syndrome. This is a disorder caused by a defect in chromosome 22 and results in a wide variety of symptoms, potentially affecting the entire body. Rebecca spent six months in hospital before finally going home with 24/7 care.

Since then, this determined five-year old has managed to make great strides in her development. Though she deals with severe feeding issues, severe speech delay, moderate physical delay, and breathing issues, Rebecca has an amazing ability to bounce back. Her family says they have become better people because of their Tiny Light’s determination. “She amazes me every day with the things she can do and the constant growth she shows in spite of her syndrome.”

Written by Elaine Yong


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