www.donnalarmour.com
Tiny
Light Griffin enjoys listening to music and watching light projection
shows on the wall. He particularly loves the noise and movements of his
two sisters, Kay and Hannah, and has lots of fun playing hooky from
school!
At
birth, it was known that Griffin had a disability, but the nature and
severity of it was not determined until he was two years of age. It was
at this point when he was diagnosed with Spastic Quad Cerebral Palsy, a
motor condition that causes physical disability in human development
and has a limited life span. Griffin has also subsequently been
diagnosed with a seizure disorder and scoliosis. He is completely
dependent on his family, is non-verbal, g-tube fed and has cortical
visual impairment.
Griffin’s
parents say that the most remarkable part of their journey has been
“...to be immersed in a world of life so unlike the typical parenting
journey. The connections and friendships and professional relationships
that we have because of Griffin have added knowledge, friends, and
comrades to our lives, which has immensely expanded our view and
knowledge of the world.”
Although
a great deal of uncertainty surrounds Griffin’s future, his family’s
primary focus is maintaining a good quality of life for him. As a
message to others in similar situations, Griffin’s parents say to be
sure that you know that “you deserve the same inherent dignity of life
as anyone else. Your life has value.”
Story by Stephanie Bond
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