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Tiny
light Amy enjoys singing, dancing and greeting everyone she encounters
with a big smile. She especially loves spending time playing tag with
her sisters Elise and Claire.
Just
minutes after her birth, Amy was diagnosed with Down syndrome. Amy has
been lucky and has not had many of the medical conditions associated
with the syndrome, but she did have her tonsils and adenoids removed to
assist with sleeping and breathing issues. She also had tubes inserted into her ears in order to drain fluid and improve her hearing.
Amy
undergoes occupational therapy, physiotherapy and speech therapy to
continually improve her quality of life. Her parents state that the most
difficult aspect of their journey has been evaluating her developmental
milestones. They are repeatedly faced with questions such as, “Are we
doing enough? Or should we just let her...develop at her own pace?” They
credit this “balancing act” with teaching them to slow down and
appreciate life in a much deeper way.
Witnessing
Amy’s determination to accomplish a task or reach a milestone inspires
her family’s own perseverance. As a message to other families dealing
with similar circumstances, Amy’s parents note that “it is a wonderful
journey that will have hard days but...your child...will change your
family in (good) ways you never expected.”
Story by Stephanie Bond
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