To listen to our song 'Tiny Light' by Cory Woodward please press play. To Buy the song click HERE

Emma's Story

Thursday, June 28, 2012
Images Captured by Studio 9 Photographics

Even though 10 month old Emma has spent time in the hospital and has been through several surgeries already, she is a very happy little girl. This tiny light loves listening to stories, cuddling, spending time with her family, and playing with the packaging that her medical supplies come in.

When her mother was 16 weeks pregnant, a blood test indicated that Emma was at risk for spina bifida. Following an MRI and an ultrasound, they cleared her of spina bifida but noticed a heart defect called tetrology of fallot and limb abnormalities in her right arm. Emma was diagnosed with VACTERL association, a non-random association of birth defects. She has a cardiac defect, a tracheoesophageal fistula (an abnormal connection between the trachea and the esophagus), an esophageal atresia (an abnormal connection between the esophagus and the stomach), and limb abnormalities. She is missing a radius bone in her right arm and a right thumb and her left leg tibia bone is slightly curved and shorter than it should be. Emma also has a tracheomalacia, a collapsing of the cartilage in her airway.

This tiny light has a bright future ahead of her. She has had her heart repaired and her stomach sewn to her esophagus. Soon she will receive surgery on her hand and will eventually lose the tracheostomy that supports her airway. It has been incredible for her family to watch her grow and thrive despite all she has been through.

“Emma inspires us to be thankful, to enjoy the many happy moments of life and to grow stronger from the hard times.”
Story Written by Emily Harrison


Post a Comment