Images Captured by Anna Epp Photography
www.annaeppphotography.com
Eight year old Eila has an amazing
ability to bring joy to everyone around her. This Tiny Light loves music, silly
sounds, and toys that light up or play music. She is happiest when swimming,
interacting with other children, and horseback riding. This beautiful little
girl touches the lives of everyone she meets. In her mother’s words, “She is a
magnet for smiles, brightness and good.”
Eila’s parents Angie and Jeremy took a list of concerns
to her six month check up and were referred to a paediatrician. Over the past
eight years, Eila has undergone numerous tests
and met many doctors. She has been
diagnosed with global developmental delays and microcephaly - a genetic
condition which causes an abnormally small head - but the causes are
unknown. Doctors feel she has many indicators to explain a genetic
mutation or
deletion but nothing has shown up yet in testing. Her parents hope that
sometime
in the future, genetics research will provide an explanation for Eila’s
condition.
Eila requires help with all aspects of
daily living, including feeding, bathing, and dressing. She is not yet able to
communicate but she understands far more than people may think she does. The family continue to work on cause and effect and choice-making skills, hoping
to one day progress to picture cards or technology to help her communicate. Her
parents hope their daughter continues to be “happy, healthy and always adored.”
Story by Emily Harrison
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