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Tiny Light Gavin is a busy boy who loves to get into a lot of mischief. This four year old is a great explorer and has no sense of fear. He is full of love and has pure joy for life.
Within a few days of his birth, parents Sandra and Scott learned the devastating news – their son had lost close to 80% of the left side of his brain due to a stroke. Blood clots also significantly damaged his left arm, leaving it partially paralyzed. Doctors do not know why blood clots formed during Gavin’s birth and there is currently no treatment for stroke in babies. As a result, he has right hemiplegic cerebral palsy and a number of other conditions including epilepsy, loss of vision in his entire right field, severe speech and cognitive delays. It is difficult for Gavin to go out on longer trips because he has sensory sensitivities and gets overstimulated.
Despite Gavin’s challenges, he navigates his world very well. He loves music and dancing, playing on the swing and making a mess. This happy boy is determined to do things his own way. He never shies away from new experiences and challenges.
“We try our best to enjoy every moment and find a balance between preparing for his future and enjoying the present.”
Written by Elaine Yong
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