Images Captured By Lifestreet Photography
Tiny Light Alex is happiest when he is surrounded by people, whether at school or at home. Though he can’t talk, he can certainly communicate with smiles, laughter and lots of hugs.
Alex was diagnosed at one month of age with a rare genetic disorder called “mosaic ring chromosome 22q13 deletion”. This means he is missing part of his genetic material, causing both mental and physical development delays. Parents Sharon and Gerhard were stunned, and the news has been especially difficult for Alex’s older sister and brother Stephanie and Marcus to understand.
The tough journey has also brought so much joy to this family. 6-year old Alex loves wrestling with his dad and siblings. He could spend all day at the playground going down the slide and he is learning soccer moves from his brother. His new favourite toy is a special tricycle built by dad. Alex can say “mama” and “dada”, which is beautiful to hear.
Now, it’s impossible to imagine life without this Tiny Light. “Alex is exactly the way we are supposed to be. He does not care if you jump ahead of him in the lineup. You can be angry with him and the first thing he will want is a hug. Imagine this world if we could be even slightly like that. It would be like heaven wouldn’t it?”
Alex was diagnosed at one month of age with a rare genetic disorder called “mosaic ring chromosome 22q13 deletion”. This means he is missing part of his genetic material, causing both mental and physical development delays. Parents Sharon and Gerhard were stunned, and the news has been especially difficult for Alex’s older sister and brother Stephanie and Marcus to understand.
The tough journey has also brought so much joy to this family. 6-year old Alex loves wrestling with his dad and siblings. He could spend all day at the playground going down the slide and he is learning soccer moves from his brother. His new favourite toy is a special tricycle built by dad. Alex can say “mama” and “dada”, which is beautiful to hear.
Now, it’s impossible to imagine life without this Tiny Light. “Alex is exactly the way we are supposed to be. He does not care if you jump ahead of him in the lineup. You can be angry with him and the first thing he will want is a hug. Imagine this world if we could be even slightly like that. It would be like heaven wouldn’t it?”
Story By Elaine Yong
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