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Arabella's Story

Wednesday, August 24, 2011
Images Captured by Pam Linfitt Photography

We are happy to tell you a little bit about this amazing little girl, Arabella.  This little one loves the world around her; she loves to see it when she goes on nature walks with her family.  She takes delight in watching her brother, and she loves to laugh and smile.

Arabella was born with Bilateral Microtia (microtia-anotia), a congenital deformity where the pinna (outer ear) is very small and underdeveloped (microtia) or absent (anotia). It can be bilateral (affecting both sides) or unilateral (one side only).  The pregnancy was very difficult for her mother, with several problems along the way. Arabella was born nine-and-a-half weeks premature, which resulted in swallowing issues. When her parents were first told about her Bilateral Microtia, they cried with happiness.  You see, they did not think that their little one was going to make it at all. They were the luckiest family in the world; they had an amazing new daughter.

Arabella spent two-and-a-half months in NICU. Her big brother, Linken, did not meet her until she came home from the hospital.

The family is so grateful for the support they received from their family, friends, their community, and the staff at the hospitals. They learned to be thankful every day for the gift of life.

Her parents give this advice: "Be your child's biggest advocate, fight for your child – all the while never forgetting your spouse and other children." They hope that Arabella will someday become a motivational speaker.

"Anyone can give up; it's the easiest thing in the world to do.  But to hold it together when everyone else would understand if you fell apart, that's true strength." -- Christopher Reeve

Story written by Billie Depatie


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